Schedule

All times listed below are Eastern Daylight Time.

Wednesday, May 1, 2024

8:15am to 8:30am
Welcome Announcements and Introductions

Niraj Sharma, MD, MPH

8:30am to 9:30am
Defining "Successful" Transition of Young Adults in 2024 and Current Assessment from Got Transition®

Niraj Sharma, MD, MPH and Susan Shanske, LICSW

9:30am to 10:00am
Teaching Self-Management Skills: Strategies and Best Practices Gleaned from Diabetes Care

Katharine Garvey, MD, MPH

10:00am to 10:15am
Break
10:15am to 10:45am
Maximizing Independence: Valuable Lessons from Care of Patients with Epilepsy

Tracey Milligan, MD, MS, FAAN

10:45am to 11:15am
Ensuring Adherence: Strategies and Best Practices Gleaned from Cystic Fibrosis

Gregory S. Sawicki, MD, MPH

11:15am to 11:45am
Faculty Q&A

Drs. Garvey, Milligan, and Sawicki

11:45am to 12:15pm
The Use of Quality Improvement (QI) in Transition Care: Overview

Kitty O'Hare, MD

12:15pm to 1:15pm
QI Workshops 1A–1C (Choose one)
1A
Transition Care Policy Writing
Niraj Sharma, MD, MPH and Ahmet Uluer, DO, MPH
1B
Transition QI: Creating a Current State Process Map
Susan Shanske, LICSW and Madeline Chiujdea, BA, CPHQ, CLSSGB
1C
Gap Analysis: Current State vs. Ideal State
Staci R. Eisenberg, MD, Colleen A. Monaghan, MD and Kitty O'Hare, MD

All three sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

1:15pm to 2:25pm
Break and Poster Session (1:30pm)
2:25pm to 3:30pm
QI Workshops 2A–2C: Getting Your Transition Project Started (Choose one)
2A
Inpatient QI Project Cycle Development
Ahmet Uluer, DO, MPH and Susan Shanske, LICSW
2B
Outpatient QI Project Cycle Development (Beginners)
Colleen A. Monaghan, MD and Staci R. Eisenberg, MD
2C
Outpatient QI Project Cycle Development (Advanced)
Kitty O'Hare, MD

All three sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

3:30pm to 3:40pm
Break
3:40pm to 4:10pm
Preparing Women with Chronic Conditions for Pregnancy: Strategies and Best Practices Gleaned from Congenital Heart Disease Care

Anne Marie Valente, MD

4:10pm to 4:40pm
Mental Health --Title TBD

Yoshio Kaneko, MD

4:40pm to 5:10pm
Substance Use Disorder in Transition-Age Youth

Scott Hadland, MD, MPH, MS

5:10pm to 5:30pm
Faculty Q&A

 Drs. Hadland, Kaneko, and Valente

5:30pm
Adjourn Live Stream
5:30pm
Study Hall

Time for self-paced study of any of the pre-recorded sessions listed below.

Supplementary Sessions (pre-recorded, 40-minute lectures)

Inflammatory Bowel Disease and Coping with a Chronic Condition
Sarah N. Flier, MD
Lessons from Care of Patients with Sickle Cell Disease
Maureen M. Achebe, MD
Creating a Transition Program for Solid Organ Transplant
Dawn Freiberger, RN, MSN, CCTC, Lynne Helfand, MSW, LICSW, MPH, and Brendan Kimball, MBA
Solid Organ Transplant and Navigating Chronic Care Transitions
Scott A. Elisofon, MD
Cancer Survivorship and Adult Screening Guidelines
Ann H. Partridge, MD, MPH
Measuring Care Coordination and Care Integration
Richard C. Antonelli, MD, MS
Building Your Team: Lessons from Care of Patients with Spina Bifida
Erin McNamara, MD, MPH
Pregnancy and Women with Mobility Disabilities
Lisa I. Iezzoni, MD, MSc
Chronic Pain
Rachael B. Coakley, PhD
Palliative Care: Approaching Conversations in Youth with Life-Limiting Conditions
Elisabeth Dellon, MD, MPH and Ashley Allen, MD, MSPH
Obesity in Adolescents and Young Adults with Shared Patient Perspectives
Fatima Cody Stanford, MD, MPH, MPA, MBA, FAAP, FACP, FAHA, FAMWA, FTOS, DABOM
HIV in Teens
Anne M. Neilan, MD, MPH
Sexual Health in Chronic Illness (including Fertility)
Julia C. Roboff, MSN, FNP-BC

Thursday, May 2, 2024

8:30am to 8:45am
Morning Announcements

Niraj Sharma, MD, MPH

8:45am to 9:15am
Embedding Health Equity in a Population Health Approach

Alexy D. Arauz Boudreau, MD, MPH

9:15am to 9:45am
Systems-Based Approach to Preparing Youth for Transition: A Care Management Model

Katherine H. Schiavoni, MD, MPP

9:45am to 10:15am
Lessons Learned from Ghana

Dr. Leah Ratner

10:15am to 10:45am
Faculty Q&A

Drs. Arauz Boudreau, Schiavoni, and Ratner

10:45am to 11:00am
Break
11:00am to 11:30am
Building a Road Map for Change: Improving Transitions to Adulthood

Elaine Gabovitch, MPA

11:30am to 12:00pm
Inpatient Consult Service Models: Real World Lessons

Ahmet Uluer, DO, MPH

12:00pm to 12:30pm
Preparation Basics: How to Create a Medical Summary/Emergency Plan

Kristina Taylor, BS, BSN, RN

12:30pm to 1:00pm
Faculty Q&A

Ms. Gabovitch, Dr. Uluer, and Ms. Taylor

1:00pm to 2:00pm
Break and Poster Session (1:15pm)
2:00pm to 2:30pm
Building and Sustaining a Comprehensive Transition Program

Ahmet Uluer, DO, MPH

2:30pm to 3:15pm
Roundtables 3A–3C (Choose one)
3A
Connecting Patients Using Social Media and Technology
Jonathan S. Hausmann, MD
3B
Finding Adult Providers: Creating the Warm Handoff into the Soft Landing
Margaret E. Threadgill, MD, MBA
3C
Approach to Transition Care in a Community Health Center
Meaghan Hamilton, PNP, C. Alexis Hopkins, MPH, Caitlin Erwin, BSN, RN, and Jessica Syswerda, CNP

All three sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

3:15pm to 3:30pm
Break
3:30pm to 4:15pm
Roundtables 4A–4C (Choose one)
4A
Connecting Patients Using Social Media and Technology
Jonathan S. Hausmann, MD
4B
Finding Adult Providers: Creating the Warm Handoff into the Soft Landing
Margaret E. Threadgill, MD, MBA
4C
Approach to Transition Care in a Community Health Center
Meaghan Hamilton, PNP, C. Alexis Hopkins, MPH, Caitlin Erwin, BSN, RN, and Jessica Syswerda, CNP

All three sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

4:15pm to 5:15pm
Navigating College with Chronic Conditions: Patient Perspectives

Janis Arnold, MSW, LICSW and Sneha Dave

5:30pm
Adjourn Live Stream
5:30pm
Study Hall

Time for self-paced study of any of the pre-recorded sessions listed below.

Supplementary Sessions (pre-recorded, 40-minute lectures)

Inflammatory Bowel Disease and Coping with a Chronic Condition
Sarah N. Flier, MD
Lessons from Care of Patients with Sickle Cell Disease
Maureen M. Achebe, MD
Creating a Transition Program for Solid Organ Transplant
Dawn Freiberger, RN, MSN, CCTC, Lynne Helfand, MSW, LICSW, MPH, and Brendan Kimball, MBA
Solid Organ Transplant and Navigating Chronic Care Transitions
Scott A. Elisofon, MD
Cancer Survivorship and Adult Screening Guidelines
Ann H. Partridge, MD, MPH
Measuring Care Coordination and Care Integration
Richard C. Antonelli, MD, MS
Building Your Team: Lessons from Care of Patients with Spina Bifida
Erin McNamara, MD, MPH
Entering Adulthood with a Chronic Mental Health Condition
Trina E. Chang, MD, MPH
Pregnancy and Women with Mobility Disabilities
Lisa I. Iezzoni, MD, MSc
Chronic Pain
Rachael B. Coakley, PhD
Palliative Care: Approaching Conversations in Youth with Life-Limiting Conditions
Elisabeth Dellon, MD, MPH and Ashley Allen, MD, MSPH
Obesity in Adolescents and Young Adults with Shared Patient Perspectives
Fatima Cody Stanford, MD, MPH, MPA, MBA, FAAP, FACP, FAHA, FAMWA, FTOS, DABOM
HIV in Teens
Anne M. Neilan, MD, MPH
Sexual Health in Chronic Illness (including Fertility)
Julia C. Roboff, MSN, FNP-BC

Friday, May 3, 2024

8:30am to 8:45am
Morning Announcements

Niraj Sharma, MD, MPH

8:45am to 9:45am
Perspectives: Patients, Parents, and Providers—Navigating the Complexities of Communication

Laurie N. Fishman, MD

9:45am to 10:15am
Down Syndrome through the Lifespan

Stephanie L. Santoro, MD

10:15am to 10:30am
Faculty Q&A

Drs. Fishman and Santoro

10:30am to 10:45am
Break
10:45am to 11:15am
Autism in Transition

Sarah J. Spence, MD, PhD

11:15am to 11:45am
KIND Clinic: Gynecologic Care for Women with Intellectual Disabilities

Kathleen Nolan, NP

11:45am to 12:00pm
Faculty Q&A

Dr. Spence and Ms. Nolan

12:00pm to 1:00pm
Break
1:00pm to 1:30pm
Educational Advocacy for Youth with Intellectual/Developmental Disability

Alison D. Schonwald, MD

1:30pm to 2:15pm
Assessing for Independence and Support Needs

Jennifer Turek Queally, PhD

2:15pm to 2:30pm
Faculty Q&A

Drs. Queally and Schonwald

2:30pm to 2:45pm
Break
2:45pm to 3:45pm
Breakouts 5A–5C (Choose one)
5A
Outpatient Billing for Transition
Colleen A. Monaghan, MD
5B
Comorbid Mental Health Conditions: Lessons from Transplant
Kristine McKenna, PhD
5C
Outpatient Clinic for Children/Young Adults with Complex Medical Conditions
Kristin M. Farias, MD

All four sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

3:45pm to 4:15pm
Transition Medicine and National Health Policy

Niraj Sharma, MD, MPH

4:15pm to 4:45pm
Promoting Self-Management and Self-Advocacy

Sneha Dave and Colleen Huysman, MSW, LICSW

4:45pm to 5:00pm
Closing Remarks

Niraj Sharma, MD, MPH

5:00pm
Study Hall

Time for self-paced study of any of the pre-recorded sessions listed below.

Supplementary Sessions (pre-recorded, 40-minute lectures)

Inflammatory Bowel Disease and Coping with a Chronic Condition
Sarah N. Flier, MD
Lessons from Care of Patients with Sickle Cell Disease
Maureen M. Achebe, MD
Creating a Transition Program for Solid Organ Transplant
Dawn Freiberger, RN, MSN, CCTC, Lynne Helfand, MSW, LICSW, MPH, and Brendan Kimball, MBA
Solid Organ Transplant and Navigating Chronic Care Transitions
Scott A. Elisofon, MD
Cancer Survivorship and Adult Screening Guidelines
Ann H. Partridge, MD, MPH
Measuring Care Coordination and Care Integration
Richard C. Antonelli, MD, MS
Building Your Team: Lessons from Care of Patients with Spina Bifida
Erin McNamara, MD, MPH
Pregnancy and Women with Mobility Disabilities
Lisa I. Iezzoni, MD, MSc
Chronic Pain
Rachael B. Coakley, PhD
Palliative Care: Approaching Conversations in Youth with Life-Limiting Conditions
Elisabeth Dellon, MD, MPH and Ashley Allen, MD, MSPH
Obesity in Adolescents and Young Adults with Shared Patient Perspectives
Fatima Cody Stanford, MD, MPH, MPA, MBA, FAAP, FACP, FAHA, FAMWA, FTOS, DABOM
HIV in Teens
Anne M. Neilan, MD, MPH
Sexual Health in Chronic Illness (including Fertility)
Julia C. Roboff, MSN, FNP-BC