Optimizing Transition from Pediatric to Adult Care

All times listed below are Eastern Daylight Time.

Wednesday, May 1, 2024

8:15am to 8:30am

Welcome Announcements and Introductions

Niraj Sharma, MD, MPH

8:30am to 9:30am

Defining "Successful" Transition of Young Adults in 2024 and Current Assessment from Got Transition®

Niraj Sharma, MD, MPH and Susan Shanske, LICSW

9:30am to 10:00am

Teaching Self-Management Skills: Strategies and Best Practices Gleaned from Diabetes Care

Katharine Garvey, MD, MPH

10:00am to 10:15am

Break

10:15am to 10:45am

Maximizing Independence: Valuable Lessons from Care of Patients with Epilepsy

Tracey Milligan, MD, MS, FAAN

10:45am to 11:15am

Ensuring Adherence: Strategies and Best Practices Gleaned from Cystic Fibrosis

Gregory S. Sawicki, MD, MPH

11:15am to 11:45am

Faculty Q&A

Drs. Garvey, Milligan, and Sawicki

11:45am to 12:15pm

The Use of Quality Improvement (QI) in Transition Care: Overview

Kitty O'Hare, MD

12:15pm to 1:15pm

QI Workshops 1A–1C (Choose one)

Transition Care Policy Writing

Niraj Sharma, MD, MPH and Ahmet Uluer, DO, MPH

Transition QI: Creating a Current State Process Map

Madeline Chiujdea, BA, CPHQ, CLSSGB and Natalie Mann, BSE

Gap Analysis: Current State vs. Ideal State

Staci R. Eisenberg, MD, Colleen A. Monaghan, MD and Kitty O'Hare, MD

All three sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

1:15pm to 2:25pm

Break and Poster Session (1:30pm)

2:25pm to 3:30pm

QI Workshops 2A–2C: Getting Your Transition Project Started (Choose one)

Inpatient QI Project Cycle Development

Ahmet Uluer, DO, MPH and Susan Shanske, LICSW

Outpatient QI Project Cycle Development (Beginners)

Colleen A. Monaghan, MD and Staci R. Eisenberg, MD

Outpatient QI Project Cycle Development (Advanced)

Kitty O'Hare, MD

3:30pm to 3:40pm

Break

3:40pm to 4:10pm

Preparing Women with Chronic Conditions for Pregnancy: Strategies and Best Practices Gleaned from Congenital Heart Disease Care

Anne Marie Valente, MD

4:10pm to 4:40pm

Mental Health --Title TBD

Yoshio Kaneko, MD

4:40pm to 5:10pm

Substance Use Disorder in Transition-Age Youth

Scott Hadland, MD, MPH, MS

5:10pm to 5:30pm

Faculty Q&A

Drs. Hadland, Kaneko, and Valente

5:30pm

Adjourn Live Stream

5:30pm

Study Hall

Time for self-paced study of any of the pre-recorded sessions listed below.

Supplementary Sessions (pre-recorded, 40-minute lectures)

Inflammatory Bowel Disease and Coping with a Chronic Condition

Sarah N. Flier, MD

Lessons from Care of Patients with Sickle Cell Disease

Maureen M. Achebe, MD

Creating a Transition Program for Solid Organ Transplant

Dawn Freiberger, RN, MSN, CCTC, Lynne Helfand, MSW, LICSW, MPH, and Brendan Kimball, MBA

Solid Organ Transplant and Navigating Chronic Care Transitions

Scott A. Elisofon, MD

Cancer Survivorship and Adult Screening Guidelines

Ann H. Partridge, MD, MPH

Measuring Care Coordination and Care Integration

Richard C. Antonelli, MD, MS

Building Your Team: Lessons from Care of Patients with Spina Bifida

Erin McNamara, MD, MPH and Arda Hotz, MD, MPH

Pregnancy and Women with Mobility Disabilities

Lisa I. Iezzoni, MD, MSc

Chronic Pain

Rachael B. Coakley, PhD

Palliative Care: Approaching Conversations in Youth with Life-Limiting Conditions

Elisabeth Dellon, MD, MPH and Ashley Allen, MD, MSPH

Obesity in Adolescents and Young Adults with Shared Patient Perspectives

Fatima Cody Stanford, MD, MPH, MPA, MBA, FAAP, FACP, FAHA, FAMWA, FTOS, DABOM

HIV in Teens

Anne M. Neilan, MD, MPH

Sexual Health in Chronic Illness (including Fertility)

Julia C. Roboff, MSN, FNP-BC

Thursday, May 2, 2024

8:30am to 8:45am

Morning Announcements

Niraj Sharma, MD, MPH

8:45am to 9:15am

Embedding Health Equity in a Population Health Approach

Alexy D. Arauz Boudreau, MD, MPH

9:15am to 9:45am

Systems-Based Approach to Preparing Youth for Transition: A Care Management Model

Katherine H. Schiavoni, MD, MPP

9:45am to 10:15am

Lessons of Twenty Years on Your Own Feet: Transition Care in the Netherlands

Dr. Jane Sattoe

10:15am to 10:45am

Faculty Q&A

Drs. Arauz Boudreau, Schiavoni, and Sattoe

10:45am to 11:00am

Break

11:00am to 11:30am

Building a Road Map for Change: Improving Transitions to Adulthood

Elaine Gabovitch, MPA

11:30am to 12:00pm

Inpatient Consult Service Models: Real World Lessons

Ahmet Uluer, DO, MPH

12:00pm to 12:30pm

Preparation Basics: How to Create a Medical Summary/Emergency Plan

Kristina Taylor, BS, BSN, RN

12:30pm to 1:00pm

Faculty Q&A

Ms. Gabovitch, Dr. Uluer, and Ms. Taylor

1:00pm to 2:00pm

Break and Poster Session (1:15pm)

2:00pm to 2:30pm

Building and Sustaining a Comprehensive Transition Program

Ahmet Uluer, DO, MPH

2:30pm to 3:15pm

Roundtables 3A–3C (Choose one)

Connecting Patients Using Social Media and Technology

Jonathan S. Hausmann, MD

Finding Adult Providers: Creating the Warm Handoff into the Soft Landing

Margaret E. Threadgill, MD, MBA

Approach to Transition Care in a Community Health Center

Meaghan Hamilton, PNP, C. Alexis Hopkins, MPH, and Caitlin Erwin, BSN, RN

3:15pm to 3:30pm

Break

3:30pm to 4:15pm

Roundtables 4A–4C (Choose one)

Connecting Patients Using Social Media and Technology

Jonathan S. Hausmann, MD

Finding Adult Providers: Creating the Warm Handoff into the Soft Landing

Margaret E. Threadgill, MD, MBA

Approach to Transition Care in a Community Health Center

Meaghan Hamilton, PNP, C. Alexis Hopkins, MPH, and Caitlin Erwin, BSN, RN

4:15pm to 5:15pm

Navigating College with Chronic Conditions: Patient Perspectives

Janis Arnold, MSW, LICSW and Sneha Dave

5:30pm

Adjourn Live Stream

5:30pm

Study Hall

Time for self-paced study of any of the pre-recorded sessions listed below.

Supplementary Sessions (pre-recorded, 40-minute lectures)

Inflammatory Bowel Disease and Coping with a Chronic Condition

Sarah N. Flier, MD

Lessons from Care of Patients with Sickle Cell Disease

Maureen M. Achebe, MD

Creating a Transition Program for Solid Organ Transplant

Dawn Freiberger, RN, MSN, CCTC, Lynne Helfand, MSW, LICSW, MPH, and Brendan Kimball, MBA

Solid Organ Transplant and Navigating Chronic Care Transitions

Scott A. Elisofon, MD

Cancer Survivorship and Adult Screening Guidelines

Ann H. Partridge, MD, MPH

Measuring Care Coordination and Care Integration

Richard C. Antonelli, MD, MS

Building Your Team: Lessons from Care of Patients with Spina Bifida

Erin McNamara, MD, MPH and Arda Hotz, MD, MPH

Pregnancy and Women with Mobility Disabilities

Lisa I. Iezzoni, MD, MSc

Chronic Pain

Rachael B. Coakley, PhD

Palliative Care: Approaching Conversations in Youth with Life-Limiting Conditions

Elisabeth Dellon, MD, MPH and Ashley Allen, MD, MSPH

Obesity in Adolescents and Young Adults with Shared Patient Perspectives

Fatima Cody Stanford, MD, MPH, MPA, MBA, FAAP, FACP, FAHA, FAMWA, FTOS, DABOM

HIV in Teens

Anne M. Neilan, MD, MPH

Sexual Health in Chronic Illness (including Fertility)

Julia C. Roboff, MSN, FNP-BC

Friday, May 3, 2024

8:30am to 8:45am

Morning Announcements

Niraj Sharma, MD, MPH

8:45am to 9:45am

Perspectives: Patients, Parents, and Providers—Navigating the Complexities of Communication

Laurie N. Fishman, MD

9:45am to 10:15am

Down Syndrome through the Lifespan

Stephanie L. Santoro, MD

10:15am to 10:30am

Faculty Q&A

Drs. Fishman and Santoro

10:30am to 10:45am

Break

10:45am to 11:15am

Autism in Transition

Sarah J. Spence, MD, PhD

11:15am to 11:45am

KIND Clinic: Gynecologic Care for Women with Intellectual Disabilities

Kathleen Nolan, NP

11:45am to 12:00pm

Faculty Q&A

Dr. Spence and Ms. Nolan

12:00pm to 1:00pm

Break

1:00pm to 1:30pm

Educational Advocacy for Youth with Intellectual/Developmental Disability

Alison D. Schonwald, MD

1:30pm to 2:15pm

Assessing for Independence and Support Needs

Jennifer Turek Queally, PhD

2:15pm to 2:30pm

Faculty Q&A

Drs. Queally and Schonwald

2:30pm to 2:45pm

Break

2:45pm to 3:45pm

Breakouts 5A–5C (Choose one)

Outpatient Billing for Transition

Colleen A. Monaghan, MD

Comorbid Mental Health Conditions: Lessons from Transplant

Kristine McKenna, PhD

Outpatient Clinic for Children/Young Adults with Complex Medical Conditions

Kristin M. Farias, MD

All four sessions will be recorded as they are live streamed and placed in the online course video library, enabling registrants to view more than one workshop. The video library will be available for 60 days after the conclusion of the course.

3:45pm to 4:15pm

Transition Medicine and National Health Policy

Niraj Sharma, MD, MPH

4:15pm to 4:45pm

Promoting Self-Management and Self-Advocacy

Sneha Dave and Colleen Huysman, MSW, LICSW

4:45pm to 5:00pm

Closing Remarks

Niraj Sharma, MD, MPH

5:00pm

Study Hall

Time for self-paced study of any of the pre-recorded sessions listed below.

Supplementary Sessions (pre-recorded, 40-minute lectures)

Inflammatory Bowel Disease and Coping with a Chronic Condition

Sarah N. Flier, MD

Lessons from Care of Patients with Sickle Cell Disease

Maureen M. Achebe, MD

Creating a Transition Program for Solid Organ Transplant

Dawn Freiberger, RN, MSN, CCTC, Lynne Helfand, MSW, LICSW, MPH, and Brendan Kimball, MBA

Solid Organ Transplant and Navigating Chronic Care Transitions

Scott A. Elisofon, MD

Cancer Survivorship and Adult Screening Guidelines

Ann H. Partridge, MD, MPH

Measuring Care Coordination and Care Integration

Richard C. Antonelli, MD, MS

Building Your Team: Lessons from Care of Patients with Spina Bifida

Erin McNamara, MD, MPH and Arda Hotz, MD, MPH

Pregnancy and Women with Mobility Disabilities

Lisa I. Iezzoni, MD, MSc

Chronic Pain

Rachael B. Coakley, PhD

Palliative Care: Approaching Conversations in Youth with Life-Limiting Conditions

Elisabeth Dellon, MD, MPH and Ashley Allen, MD, MSPH

Obesity in Adolescents and Young Adults with Shared Patient Perspectives

Fatima Cody Stanford, MD, MPH, MPA, MBA, FAAP, FACP, FAHA, FAMWA, FTOS, DABOM

HIV in Teens

Anne M. Neilan, MD, MPH

Sexual Health in Chronic Illness (including Fertility)

Julia C. Roboff, MSN, FNP-BC

Schedule

Wednesday, May 1, 2024

Supplementary Sessions (pre-recorded, 40-minute lectures)

Thursday, May 2, 2024

Supplementary Sessions (pre-recorded, 40-minute lectures)

Friday, May 3, 2024

Supplementary Sessions (pre-recorded, 40-minute lectures)

Research and Innovation in Transition

Learning Objectives

Program Notes